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Welcome to the website of

Families of Spinal Muscular Atrophy Canada Society

FSMAC is the national charity dedicated to supporting Canadians affected by Spinal Muscular Atrophy and supporting research in our quest to find a cure or treatment for SMA.

If you or a family member are newly diagnosed, please click New Diagnosis for directions on how to access help.

Support, Research, Hope –
It is what we are here for.

Questions? Please email Susi Vander Wyk at Head Office

SMA - Never give up. Thank you for giving us hope. Please click to play. (HD version available for your event at https://youtu.be/q4Eu5ftcq-I)

Biogen ENDEAR Update - transition to expanded access program. "... we have reported positive results from a pre-specified interim analysis of the ENDEAR study in infants with infantile-onset Spinal Muscular Atrophy (consistent with Type 1). As a result, plans are underway to transition all ENDEAR study participants to nusinersen in an open-label extension study and close the ENDEAR study. We plan to submit regulatory filings globally in the coming months. This step will hopefully bring us closer to our ultimate goal of making nusinersen available as quickly as possible as an approved therapy." (Sept 2016)

Research Update from Roche - SMN2 Splicing Modifier Programme (Sept 2016)

Look for Families of SMA Canada Society on FaceBook
for current events, research news and more


FSMA Canada is proud to celebrate over 10 years of partnership with Cure SMA
(formerly Families of SMA - USA)

Cure S M A