Here is what Cure SMA Canada has been working on at the conference:
– Met with all the key research groups/drug companies receiving in depth and up to the minute updates on research
and discussion on how to incolve Canada in future research.
– Discussion with sstakeholders about bringing more clinical trials to Canada
including Avexis and Roche/Genentech.
– Organised a Q & A with Biogen for the Canadian attendees.
– Meeting with Biogen to discuss Cure SMA Canada.s strategy and next step in
negotiating for funding.
– Meeting with Avexis to begin important ground work for patient advocacy as
the begin to develop relationships with the Canadian SMA community.
– Developing potential funding for newborn screening program advocacy for Canada
– Meeting with Cure SMA (USA) president and staff to continue our
organisational relations and symmetry.
Cure SMA Canada National Conference!
Rahmi Kothary (researcher), Biogen, Avexis, CORD and more to come!
Addional sponsors and speakers have been developed while here at the conference.
More information to come