Please help the Canadian SMA Community!!!

Please help the Canadian SMA Community!!! Sign and share this petition for access to the only treatment for SMA. We need the Canadian government to hear us!! Please sign and share with everyone you know and request them to share it! This matters to all Canadians affected by rare diseases!! It’s life saving for those…

Cure SMA Canada has been working feverishly in our fight for broad access to treatment. 

Dear Cure SMA Canada Community,    Cure SMA Canada has been working feverishly in our fight for broad access to treatment.   A short but important update in these meetings and activities:  The Pan Canadian Pharmaceutical Alliance (pCPA) has moved Spinraza to the list of drug products that are under active negotiation.  Now is the right time for…