Community update January 4, 2018

Dear Canadian SMA Community and its supporters, Before the Christmas holidays, our community received a shocking response from CDEC (Canadian Drug Expert Committee) of only recommending reimbursement of a small subset of type 1 patients.  We are very frustrated with the decision,  it is unacceptable for an organization such as CADTH to not recognize the…

update to approuval process

Dear SMA Community, We hope you are enjoying your summer. We know many of you are anxious about the approval process for Spinraza in Canada and therefore would like to update you. To more fully understand the timing of reviews by the Common Drug Review, you will find the following link helpful: https://www.cadth.ca/nusinersen. If you…