Tangerine top 20 finalists

Congratulations – Cure SMA Canada has been selected as one of the #Tangerine20 contest’s Top 20 finalists. Cure SMA Canada’s mission touched our hearts, and deeply resonated with us and our goal to give back. Your organization rose to the top of nearly 400 inspiring entries for the #Tangerine20 contest! It was an extremely tough…

Cure SMA conference update

Here is what Cure SMA Canada has been working on at the conference:   – Met with all the key research groups/drug companies receiving in depth and up to the minute updates on research and discussion on how to incolve Canada in future research. – Discussion with sstakeholders about bringing more clinical trials to Canada…

April Members update

Dear members, We at Cure SMA Canada continue to monitor, provide input and represent our SMA community as we navigate the process of approval of Biogen’s Nusinersen/Spinraza in Canada. We’d like to update you on this process as well as prepare you for the requirements for the best possible result for our SMA patients. Through…

March Members update

March 14, 2017 Dear Cure SMA Canada Members, We at Cure SMA Canada would like you to know that we understand pressures that our families are facing in terms of waiting for the regulatory approval from Health Canada of Biogen’s, Spinraza. We are advocating on behalf of those affected by SMA in Canada and will…

Biogen Nusinersen application

January 24, 2017 Dear Cure SMA Canada Members, I hope you are doing well. I would like to update you on the latest information to share about Biogen’s Nusinersen application for approval from Health Canada. There are many questions being asked in terms of where we are with the application from a patient’s timeline perspective…