How does it feel to be able to access a life saving treatment and know others aren’t able to?
How has the experience of loss of function affected your family?
Do you feel older patients should have the same opportunities as younger?
What changes/ improvements would you hope to see by accessing Spinraza?
How would you feel if the gov’t decides to NOT approve reimbursement for your type of SMA?
How has the fight for treatment impacted the Cure SMA Canada organization?
Are you disappointed in our Canadian Government?
What is your most significant physical loss and how has that loss impacted your life?
Is it fair for the gov’t to only use clinical trial data and ignore real life Spinraza data?
Dear Canadian Government, The Spinal Muscular Atrophy (SMA) patient community has been fighting a very serious battle to access Spinraza, the only treatment that has ever been developed for this life limiting and progressive disease. We have been in a life or death battle for the past 2 years. Over 40 other countries have already…