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Cure SMA Canada Conference – Registration still available!!

November 5 @ 8:00 am - 5:00 pm

Held in conjunction with the CORD (Canadian Organization for Rare Diseases) conference which will be November 6-7, 2017 at the same location.
We recommend attending both conferences.

Attendance Scholarships available.
To register please send an email to sma_can@telus.net

We highly recommend you take advantage of this unique opportunity to connect and learn, hear directly from researchers, drug companies, and individuals.  Ask questions, get answers!

 

November 5, 2017

7:30am to 9:00am

Registration and Reception

Session 1

9:00 – 9:15

Opening statements – Susi VanderWyk – Cure SMA Canada

9:15 – 10:00

Durhane Wong-Rieger, president of CORD (Canadian Organization for Rare Diseases) Rare Disease in Canada, the battle of “the process”

10:00 – 10:30

Rashmi Kothary PhD – Cure SMA Canada funded research project “Muscle satellite cell biology and muscle regeneration in SMA depleted mice”

10:30 – 10:45

Break

10:45 – 11:15

Jocelyn Cote PhD – Cure SMA Canada funded research project “Investigating the mechanism by which SMN regulates translation”

11:15 – 11:45

Alex Mackenzie PhD – Cure SMA Canada Funded research project “Low dose celecoxib on SMN2 in patients”

11:45 – 12:15

Jill Jarecki – Chief Scientific Officer – Scientific Advisory Board – Cure SMA – Cure SMA Research Priorities for a New SMA Therapeutic Landscape.

12:15 – 1:15

Lunch Break (lunch provided)

Session 2

1:15 – 2:00

Biogen

2:00 – 2:45

Avexis

2:45 – 3:15

Family 1. Panel of speakers – Fundraising 5 W’s

3:15 – 3:30

Break

3:30 – 4:00

Family Panel 2. of speakers – The Emotional Roller Coaster of Progression

4:00 – 4:30

Family Panel 3. of speakers – Live with Treatment – sharing experiences from patients after treatment

4:30 – 5:00

Family Panel 4. of speakers – Keeping Positive – “Every day is a Good Day”

5:00

Closing Statements

 

Details

Date:
November 5
Time:
8:00 am - 5:00 pm
Event Category:
Event Tags:
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Website:
https://toronto.regency.hyatt.com/en/hotel/home.html

Organizer

Cure Sma Canada
Phone:
604-824-1277
Email:
fsmacan@telus.net
Website:
https://www.facebook.com/groups/SMAFamilyCamp2016/

Venue

Hyatt Regency
370 King St W
Toronto, Ontario M5V 1J9 Canada
+ Google Map
Phone:
(416) 343-1234
Website:
https://toronto.regency.hyatt.com/en/hotel/home.html