Archive for the ‘Features’ Category
Newly Funded SMA Researcher Profile
Drs. Kothary and Murray are researchers at Ottawa Hospital Research Institute and have been awarded a basic research grant for $120,000 from Families of SMA.
Click here to see the whole story
FSMA Canada has funded $1.9 Million in Research since 2004, supporting 12 Basic Research Grants, the Montreal Site of Project Cure SMA that participated in two SMA clinical trials, and Laboratory Support for all of Project Cure SMA.
‘Goodnight Angels!’
FUNDRAISING
Please welcome our newest addition to the fundraising team “Goodnight Angels!” Each book purchased directly through the Families of SMA Canada site or future direct fundraisers, 50% of the net proceeds will be donated to research a cure for SMA today. Please note that this is in addition to the partial proceeds that will be donated for every book sold from any location.
THE BOOK
“Goodnight Angels!” is a colourful and beautifully illustrated children‘s picture book designed to clear away fears of the night through the introduction of positive ideas, primarily through the use of Gentle Angels. Story by Patricia Factor and Illustrated by Kent Nevins. ISBN 978-0-9868190-0-1
THE AUTHOR
Patricia Factor started reading novels at an early age and has been writing for many years. That at least explains why she has a BA in Classical Studies! She continues to enjoy the ever changing “art of writing” over the eons from 3,000 B.C. through to the present day.
It wasn‘t until she wrote this story to help her own child that she felt it was time to start sharing her work. Encouraged by some very positive feedback others experienced through reading this story provided the “fuel” necessary to see this project through to completion. Now she is just thrilled that so many children parents alike are benefiting from reading “Goodnight Angels!”
WHY SMA?
Dear friends of Patricia’s, lost their child to the type 1 SMA (Spinal Muscular Atrophy) where babies currently rarely reach the age of 2. When the opportunity was there to help increase funds to research a cure for a charity, we immediately knew that the Families of SMA Canada was the place we wanted to help create an even brighter future! “Remember, a break-through in any area of research will help all others!” Patricia Factor Thank you so much for your support and know that your generosity, however it may be given, is making a difference!
SUPPORT US
Website: www.goodnightangels.ca
To order please send your Name, Address, Postal Code and Phone #
Email to: curesma@featherpenpublishing.ca
Mail to:
Goodnight Angels!
PO Box 18001
1215C—56th St
Delta, BC, V4L 2M4
Price includes shipping and taxes. For more than 4 books, please contact us at curesma@featherpenpublishing.ca
Allow 2-4 weeks for Delivery Please make all cheques or money orders to Featherpen Publishing Inc.
PRICING
1 book – $11
2 books – $20.75
3 books – $30.10
4 books – $39.30
Angel Gala for SMA
The Angel Gala for SMA (November 12, 2011) now in its 6th year!
This amazing event sells out every year, and has raised over $400,000 for FSMAC.
Click here to see the video created for the 2010 event by Theresa Van Fraassen.
Books worth reading
SMA LIBRARY
This list includes: books written about or by people with SMA, books where a portion of the proceeds goes to SMA, and books for SMA Care and Management
- Rise Above- How one man’s search for mobility helped the world get moving- Ralph W. Braun
- Not a Fire Exit- Christopher Finlan
- Death…..and the lessons i learned- Louise Smith
- Common Sense and Other Bits of Wisdom we Tend to Forget or Ignore- Louise Smith
- The Other Side of the Coin- Tracy Lynn Armstrong
- The Me in the Mirror- Connie Panzarino
- The Jeffrey Journey- Helen Baldwin
- Alan’s Notes on Love- Chrystal MacDonald
- Victorious Life- Elizabeth Jamsa Gearheart
- My Online Angel- Jonathan Greeson
- I Sit All Amazed- The Extraordinary Power of a Mother’s Love- Steve Mikita
- Management of Patients with Neuromuscular Diseases- Dr. John R. Bach
- Noninvasive Mechanical Ventilation- Dr. John R. Bach
- Guide to the Evolution and Management of Neuromuscular Disease- Dr. John R Bach
- Pulmonary Rehabilitation and the Obstructive and Paralytic Condition- Dr. John R. Bach
- You Will Dream New Dreams- Stanley d. Klein and Kim Schive