Become a member of Cure SMA Canada and join our nationwide community of families with SMA. Membership entitles you to receive our newsletters, updates on research as well as events in your area.

Find support in knowing you are not alone.


Get connected with the SMA community and receive news on pioneering research, drug discovery and clinical trials taking place. Stay informed as we move toward a brighter future for those affected with SMA. Or as we say…

Help for today, Hope for tomorrow


No single group can find a cure for SMA alone – it requires collaboration between families, academics, industry, and government. Wherever you fit, Cure SMA Canada offers a variety of ways to contribute.

Make a difference.

Newly Diagnosed?

We are here for you, to help you navigate the wealth of information that comes with a new diagnoses of Spinal Muscular Atrophy.

Register with Cure SMA Canada! Receive a newly diagnosed package filled with information about care, treatments, support and more.

Receive support items such as appropriate toys and therapeutic items.

About SMA

SMA is a progressive neurodegenerative disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities such as breathing, eating, crawling, and walking. There are four primary types of SMA—1, 2, 3, and 4—based on the age that symptoms begin and highest physical milestone achieved. Individuals with SMA have difficulty performing the basic functions of life, like breathing and swallowing. However, SMA does not affect a person’s ability to think, learn, and build relationships with others.

Our Community

Cure SMA Canada was initiated under the name, “Families of SMA Canada” in August 2000 by a small group of caring Canadian parents who were driven to fund Canadian SMA research. In 2011, the organization evolved, became incorporated and grew. Its mission was restructured to include direct family support in addition to funding Canadian research projects. Over the years we have fostered a community of individuals and families with SMA supporting them in living full and vibrant lives.