We have completed our submission in to CADTH!
Thanks to everyone’s support and heartfelt responses, we feel we have a very strong message to the drug review committee expressing the needs of the entire SMA committee for effective treatment and the benefits of Spinraza to improve the lives of all persons and families affected by SMA. We will continue to monitor the work of the committee and will report back to the community as we hear of the progress. We urge patience at this time since it will take several months before we can expect the review to be completed. In the meantime, please feel free to share the SMA Patient Submission and to provide us with any additional feedback.
Susi Vander Wyk
Cure SMA Canada