Cure SMA Canada was initiated under the name, “Families of SMA Canada” in August 2000 by a small group of caring Canadian parents who were driven to fund Canadian SMA research. In 2011, the organization evolved, became incorporated and grew. Its mission was restructured to include direct family support in addition to funding Canadian research projects. Our board of trustees increased its representation across Canada.
Since the humble beginnings of 3 families, we have grown to represent families and individuals across Canada. We have funded over $3 million in Canadian SMA research and over half a million in family support. Each year we support Canadians through our newly diagnosed care packages, informational care booklets, equipment pool, SMA camp support, hospital support, end of life support, patient advocacy and many other direct family support services.