DAY 21
How does it feel to be able to access a life saving treatment and know others aren’t able to?
DAY 20
How has the experience of loss of function affected your family? https://youtu.be/6brsb5kOvMU
DAY 19
If you were to have one ability back that you have lost, what would it be?
DAY 18
Do you feel older patients should have the same opportunities as younger?
DAY 17
What changes/ improvements would you hope to see by accessing Spinraza?
DAY 16
How would you feel if the gov’t decides to NOT approve reimbursement for your type of SMA?
DAY 15
How has the fight for treatment impacted the Cure SMA Canada organization?
DAY 14
Are you disappointed in our Canadian Government?
DAY 13
What is your most significant physical loss and how has that loss impacted your life?
DAY 12
Is it fair for the gov’t to only use clinical trial data and ignore real life Spinraza data?