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Category Archives: MONTHLY QUESTIONS

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DAY 21

MONTHLY QUESTIONSBy ebessoFebruary 19, 2019

How does it feel to be able to access a life saving treatment and know others aren’t able to?

DAY 20

MONTHLY QUESTIONSBy ebessoFebruary 18, 2019

How has the experience of loss of function affected your family? https://youtu.be/6brsb5kOvMU

DAY 19

MONTHLY QUESTIONS, UncategorizedBy ebessoFebruary 17, 2019

If you were to have one ability back that you have lost, what would it be?

DAY 18

MONTHLY QUESTIONSBy ebessoFebruary 16, 2019

Do you feel older patients should have the same opportunities as younger?

DAY 17

MONTHLY QUESTIONSBy ebessoFebruary 15, 2019

What changes/ improvements would you hope to see by accessing Spinraza?

DAY 16

MONTHLY QUESTIONSBy ebessoFebruary 14, 2019

How would you feel if the gov’t decides to NOT approve reimbursement for your type of SMA?

DAY 15

MONTHLY QUESTIONSBy ebessoFebruary 13, 2019

How has the fight for treatment impacted the Cure SMA Canada organization?

DAY 14

MONTHLY QUESTIONSBy ebessoFebruary 12, 2019

Are you disappointed in our Canadian Government?

DAY 13

MONTHLY QUESTIONSBy ebessoFebruary 11, 2019

What is your most significant physical loss and how has that loss impacted your life?

DAY 12

MONTHLY QUESTIONSBy ebessoFebruary 10, 2019

Is it fair for the gov’t to only use clinical trial data and ignore real life Spinraza data?

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