Welcome to the website of Families of Spinal Muscular Atrophy Canada Society

JOIN OUR NEXT FUNDRAISER ON MAY 17TH

FAMILIES OF SMA CANADA SOCIETY

103-7134 VEDDER RD.
CHILLIWACK, BC V2R 4G4

 

TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363

QUESTIONS

Please email Susi Cander Wyk at head office

FSMACAN@TELUS.NET

FSMAC IS THE NATIONAL CHARITY DEDICATED TO SUPPORTING CANADIANS AFFECTED BY SPINAL MUSCULAR ATROPHY
and supporting research in our quest to find a cure or treatment for SMA.

If you or a family member are newly diagnosed, click New Diagnosis for directions on how to access help.

NEWS

Nova Scotia broadens access to SPINRAZA™ (nusinersen injection)

October 7, 2019 Dear members of the SMA community, As part of our promise and commitment to keep the Canadian SMA community apprised of important milestones regarding SPINRAZA™, we are sharing an update on recent developments regarding reimbursement in the province of Nova Scotia. Effective October 1, 2019, the Government of Nova Scotia has expanded…

Biogen Press Release

Press Release   NURTURE study shows pre-symptomatic Spinal Muscular Atrophy (SMA) infants treated with SPINRAZA™ (nusinersen injection) attained positive results ▪ Treatment with SPINRAZA™ resulted in survival of 100 percent of infants and none requiring permanent ventilation ▪ Recently published outcomes include motor milestones achieved in 100 percent of infants sitting withoutsupport and 88 percent…