Welcome to the website of Families of Spinal Muscular Atrophy Canada Society

JOIN OUR NEXT FUNDRAISER ON MAY 17TH

FAMILIES OF SMA CANADA SOCIETY

103-7134 VEDDER RD.
CHILLIWACK, BC V2R 4G4

 

TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363

QUESTIONS

Please email Susi Cander Wyk at head office

FSMACAN@TELUS.NET

FSMAC IS THE NATIONAL CHARITY DEDICATED TO SUPPORTING CANADIANS AFFECTED BY SPINAL MUSCULAR ATROPHY
and supporting research in our quest to find a cure or treatment for SMA.

If you or a family member are newly diagnosed, click New Diagnosis for directions on how to access help.

NEWS

Patient Community update.

Dear Canada’s SMA Community and our supporters, Thank you for your continued trust and support as we inch our way through the process of access to treatment here in Canada. We are, and continue to work hard to achieve what we set out to do from the very beginning, to advocate for access for all…

Ontario Expands Coverage of Spinraza!!

Ontario Government got it right!! We at Cure SMA Canada are very happy and proud to announce that the government of the province of Ontario has communicated with us that they have come to a mutually agreeable decision to approve reimbursement for Ontario’s Spinal Muscular Atrophy patients. As a follow-up to the national review process…