- This event has passed.
Cure SMA Canada Conference – Registration still available!!
November 5, 2017 @ 8:00 am - 5:00 pm
Held in conjunction with the CORD (Canadian Organization for Rare Diseases) conference which will be November 6-7, 2017 at the same location.
We recommend attending both conferences.
Attendance Scholarships available.
To register please send an email to sma_can@telus.net
We highly recommend you take advantage of this unique opportunity to connect and learn, hear directly from researchers, drug companies, and individuals. Ask questions, get answers!
November 5, 2017
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7:30am to 9:00am |
Registration and Reception |
Session 1
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9:00 – 9:15 |
Opening statements – Susi VanderWyk – Cure SMA Canada |
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9:15 – 10:00 |
Durhane Wong-Rieger, president of CORD (Canadian Organization for Rare Diseases) Rare Disease in Canada, the battle of “the process” |
|
10:00 – 10:30 |
Rashmi Kothary PhD – Cure SMA Canada funded research project “Muscle satellite cell biology and muscle regeneration in SMA depleted mice” |
|
10:30 – 10:45 |
Break |
|
10:45 – 11:15 |
Jocelyn Cote PhD – Cure SMA Canada funded research project “Investigating the mechanism by which SMN regulates translation” |
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11:15 – 11:45 |
Alex Mackenzie PhD – Cure SMA Canada Funded research project “Low dose celecoxib on SMN2 in patients” |
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11:45 – 12:15 |
Jill Jarecki – Chief Scientific Officer – Scientific Advisory Board – Cure SMA – Cure SMA Research Priorities for a New SMA Therapeutic Landscape. |
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12:15 – 1:15 |
Lunch Break (lunch provided) |
Session 2
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1:15 – 2:00 |
Biogen |
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2:00 – 2:45 |
Avexis |
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2:45 – 3:15 |
Family 1. Panel of speakers – Fundraising 5 W’s |
|
3:15 – 3:30 |
Break |
|
3:30 – 4:00 |
Family Panel 2. of speakers – The Emotional Roller Coaster of Progression |
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4:00 – 4:30 |
Family Panel 3. of speakers – Live with Treatment – sharing experiences from patients after treatment |
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4:30 – 5:00 |
Family Panel 4. of speakers – Keeping Positive – “Every day is a Good Day” |
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5:00 |
Closing Statements |