New Diagnosis

Have you or a family member just been diagnosed with SMA? We know this is a time of high stress and anxiety, and are here to help you gain knowledge and offer support.
We understand because we too have children affected by SMA.

If you or your child are newly diagnosed with SMA, email curesma@telus.net for assistance, or call the head office at 1-855-824-1277.

We send out support and information packages to all newly diagnosed families. Contents vary according to diagnoses type and availability of supplies.

Become a member of Cure SMA Canada – you will receive newsletters, as well as regular updates on research and activities in your area and connections with others.

 

CURE SMA CANADA

103-7134 VEDDER RD.
CHILLIWACK, BC V2R 4G4

 

TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363

QUESTIONS

Please email Susi Vander Wyk at head office

CURESMA@TELUS.NET

LATEST NEWS

Cure SMA Canada speaks out for the rights of Canadians affected by Spinal Muscular Atrophy to access treatment.

Cure SMA Canada speaks out for the rights of Canadians affected by Spinal Muscular Atrophy to access treatment. Please share. All patients affected by SMA in Canada have a need and a right to treatment! Youtube Video

Patient Information Update – Spinraza

Cure SMA Canada – Patient Community Announcement Cure SMA Canada is very happy to announce that the pCPA, provinces and Biogen have FINALLY come to an agreement for the first submission of Nusinersen/Spinraza for review.  We are pleased to confirm that all patients with type 1 in all jurisdictions in Canada will be able to…

Back up power supply

Power to go! There are times when all of us want electricity when we are miles from the nearest electrical outlet. Two key components to having power on the go are a mobile digital power inverter and then a battery. Ideally, a deep cell battery will handle the constant drain and recharge that you’re going…