New Diagnosis

Have you or a family member just been diagnosed with SMA? We know this is a time of high stress and anxiety, and are here to help you gain knowledge and offer support.
We understand because we too have children affected by SMA.

If you or your child are newly diagnosed with SMA, email for assistance, or call the head office at 1-855-824-1277.

We send out support and information packages to all newly diagnosed families. Contents vary according to diagnoses type and availability of supplies.

Become a member of Cure SMA Canada – you will receive newsletters, as well as regular updates on research and activities in your area and connections with others.



103-7134 VEDDER RD.


TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363


Please email Susi Vander Wyk at head office



Nova Scotia broadens access to SPINRAZA™ (nusinersen injection)

October 7, 2019 Dear members of the SMA community, As part of our promise and commitment to keep the Canadian SMA community apprised of important milestones regarding SPINRAZA™, we are sharing an update on recent developments regarding reimbursement in the province of Nova Scotia. Effective October 1, 2019, the Government of Nova Scotia has expanded…

Biogen Press Release

Press Release   NURTURE study shows pre-symptomatic Spinal Muscular Atrophy (SMA) infants treated with SPINRAZA™ (nusinersen injection) attained positive results ▪ Treatment with SPINRAZA™ resulted in survival of 100 percent of infants and none requiring permanent ventilation ▪ Recently published outcomes include motor milestones achieved in 100 percent of infants sitting withoutsupport and 88 percent…

Petition for BC, MB, PE, NL, NS Health Ministries Please share this important petition! Imagine what it was like at SMA camp west this year. As we looked around the lunch room, we saw how many of the SMA patients were accessing treatment.  We were all so very happy for them!  To hear stories of…