New Diagnosis

Have you or a family member just been diagnosed with SMA? We know this is a time of high stress and anxiety, and are here to help you gain knowledge and offer support.
We understand because we too have children affected by SMA.

If you or your child are newly diagnosed with SMA, email for assistance, or call the head office at 1-855-824-1277.

We send out support and information packages to all newly diagnosed families. Contents vary according to diagnoses type and availability of supplies.

Become a member of Cure SMA Canada – you will receive newsletters, as well as regular updates on research and activities in your area and connections with others.



103-7134 VEDDER RD.


TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363


Please email Susi Vander Wyk at head office



Canada’s Annual National SMA Awareness Day

Dear Cure SMA Canada members and supporters, We have an exciting national event that you can look forward to and participate in!! Sunday, August 18, 2019 will be Canada’s Annual National SMA Awareness Day. This national event will be celebrated in unison across the Canada. Synchronized Lighting Times Newfoundland Time Zone 6:30 Atlantic Time Zone…

Patient Community update.

Dear Canada’s SMA Community and our supporters, Thank you for your continued trust and support as we inch our way through the process of access to treatment here in Canada. We are, and continue to work hard to achieve what we set out to do from the very beginning, to advocate for access for all…

Ontario Expands Coverage of Spinraza!!

Ontario Government got it right!! We at Cure SMA Canada are very happy and proud to announce that the government of the province of Ontario has communicated with us that they have come to a mutually agreeable decision to approve reimbursement for Ontario’s Spinal Muscular Atrophy patients. As a follow-up to the national review process…