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  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
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    • SMA Camp
  • Care
    • Treatments
  • Contact Us
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  • Donate
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Tag Archives: biogen reserach

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  2. Entries tagged with "biogen reserach"

HOW MUCH LONGER WILL SMA PATIENTS HAVE TO WAIT TO GET THE APPROVED TREATMENT?

Member Update, Research NewsBy ebessoJanuary 25, 2018

    If it were not for bad news, the spinal muscular atrophy (SMA) community in Canada would have no news at all. At least in the past couple of…

Progress Needed to Help Canadians affected with SMA

Member Update, Research NewsBy ebessoJanuary 23, 2018

Cure SMA Canada urges timely, committed negotiations to provide coverage of first-ever and life-saving treatment for debilitating childhood disease. Cure SMA Canada, on behalf of Canadians diagnosed with Spinal Muscular…

European Commission (EC) granted a marketing authorization for SPINRAZA®

Research NewsBy ebessoJune 7, 2017Leave a comment

June 4, 2017 Dear members of the SMA community, In response to your request for information, we are delighted to inform you that on June 1 2017 Biogen announced that…

Progress being made in Europe and Canada to obtain regulatory approval for nusinersen

Research NewsBy ebessoMay 25, 2017Leave a comment

Dear members of the SMA community, In response to your request for ongoing information, we are providing you with additional updates. The main points in this update include: • the…

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