HOW MUCH LONGER WILL SMA PATIENTS HAVE TO WAIT TO GET THE APPROVED TREATMENT?
If it were not for bad news, the spinal muscular atrophy (SMA) community in Canada would have no news at all. At least in the past couple of…
Progress Needed to Help Canadians affected with SMA
Cure SMA Canada urges timely, committed negotiations to provide coverage of first-ever and life-saving treatment for debilitating childhood disease. Cure SMA Canada, on behalf of Canadians diagnosed with Spinal Muscular…
European Commission (EC) granted a marketing authorization for SPINRAZA®
June 4, 2017 Dear members of the SMA community, In response to your request for information, we are delighted to inform you that on June 1 2017 Biogen announced that…
Progress being made in Europe and Canada to obtain regulatory approval for nusinersen
Dear members of the SMA community, In response to your request for ongoing information, we are providing you with additional updates. The main points in this update include: • the…