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  • Home
  • SMA
    • About SMA
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    • About Us
    • Membership
    • Fundraising
    • News
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    • Calendar
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    • Tour de SMA
    • National SMA Conference
  • Care
    • Treatments
  • Contact Us
  • Donate
  • Français

Tag Archives: CURESMA

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  2. Entries tagged with "CURESMA"

Please help the Canadian SMA Community!!!

Member UpdateBy ebessoFebruary 20, 2018

Please help the Canadian SMA Community!!! Sign and share this petition for access to the only treatment for SMA. We need the Canadian government to hear us!! Please sign and…

Cure SMA Canada has been working feverishly in our fight for broad access to treatment. 

Member Update, Research NewsBy ebessoFebruary 16, 2018

Dear Cure SMA Canada Community,    Cure SMA Canada has been working feverishly in our fight for broad access to treatment.   A short but important update in these meetings and…

HOW MUCH LONGER WILL SMA PATIENTS HAVE TO WAIT TO GET THE APPROVED TREATMENT?

Member Update, Research NewsBy ebessoJanuary 25, 2018

    If it were not for bad news, the spinal muscular atrophy (SMA) community in Canada would have no news at all. At least in the past couple of…

Progress Needed to Help Canadians affected with SMA

Member Update, Research NewsBy ebessoJanuary 23, 2018

Cure SMA Canada urges timely, committed negotiations to provide coverage of first-ever and life-saving treatment for debilitating childhood disease. Cure SMA Canada, on behalf of Canadians diagnosed with Spinal Muscular…

Progress Needed to Help Canadians affected with SMA

Member UpdateBy ebessoJanuary 20, 2018Leave a comment

Cure SMA Canada urges timely, committed negotiations to provide coverage of first-ever and life-saving treatment for debilitating childhood disease     Cure SMA Canada, on behalf of Canadians diagnosed with…

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