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  • Home
  • SMA
    • About SMA
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  • Community
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    • Membership
    • Fundraising
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    • SMA Camp
  • Care
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Tag Archives: sma

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  2. Entries tagged with "sma"

As seen on Global Drug researcher disputes rare disease medication pricing

Member Update, Research NewsBy ebessoJanuary 31, 2018

Drug researcher disputes rare disease medication pricing.

Cure SMA Canada Conference – Registration still available!!

Member UpdateBy ebessoOctober 18, 2017Leave a comment

Hyatt Regency – King St. W, Toronto, Ontario November 5, 2017 Held in conjunction with the CORD (Canadian Organization for Rare Diseases) conference which will be November 6-7, 2017 at…

European Commission (EC) granted a marketing authorization for SPINRAZA®

Research NewsBy ebessoJune 7, 2017Leave a comment

June 4, 2017 Dear members of the SMA community, In response to your request for information, we are delighted to inform you that on June 1 2017 Biogen announced that…

Clinical trial 2013

Research NewsBy ebessoMay 11, 2017Leave a comment

This study will be recruiting shortly, and is open to qualifying Type 1 Infants. Canadian location is Toronto Hospital for Sick Children. From Cure SMA-US: ISIS Pharmaceuticals Initiates Clinical Study…

Canadian SMA Research News

Research NewsBy ebessoMay 11, 2017Leave a comment

Canadian SMA Research News2012 Cure SMA Canada is proud to have offered major support to the Canadian Neuromuscular Disease Registry in support of SMA registration. This registration will make a…

Expert Hearing Solutions in support of SMA Research

FundraiserBy ebessoMay 3, 2017Leave a comment

You may remember Nicole Kutchyera, Audiologist at our north office. Nicole left for maternity leave in July, 2016 and welcomed baby Cohen in early August. At just 8 weeks old,…

$140,000 Grant to Jocelyn Côté, PhD

Grants, Research NewsBy ebessoMay 2, 2017Leave a comment

Cure SMA Canada Awards $140,000 Grant to Joceyln Côté, PhD, University of Ottawa Cure SMA Canada has awarded a $140,000 research grant to Joceyln Côté, PhD, at The University of…

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