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“Help for Today, Hope for Tomorrow”
Cure SMA Canada
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Cure SMA Canada

23 hours ago

Cure SMA Canada
August is Spinal Muscular Atrophy (SMA) Awareness month!Cure SMA Canada spreads awareness throughout Canada to bring hope to a future where SMA is a curable disease.This year, the CN Tower and the Montreal Tower will be lit up in purple and orange, the Cure SMA Canada colours, on August 19 from 6:30pm until 7:00am August 20, in honour of those living with SMA, and in precious memory of those we have lost. Together we are strong in our commitment to supporting families affected by Spinal Muscular Atrophy. Untreated, SMA is a degenerative neuromuscular disease, causing weakness throughout the body. A person affected by SMA has normal cognitive ability. Lets stand strong together in remembrance of those we have lost to this disease and for those who still wait for access to treatment.Cure SMA Canada is Canada’s national charity supporting families affected by SMA through funding critical research projects, advocacy and support initiatives such as camps, newly diagnosed packages and informational conferences. Cure SMA Canada provides Help for Today and Hope for Tomorrow.Thank you to the Montreal Tower and the CN Tower management teams for supporting Cure SMA Canada to spread awareness for Spinal Muscular Atrophy.You can view the CN Tower on the live cam www.cntower.ca/#earthcamBetter yet! Take a family photo in front of it!! We’d love to see it, bring family and friends! —Août est le mois de la sensibilisation à l'amyotrophie musculaire spinale (AMS) !Cure SMA Canada sensibilise le public dans tout le Canada afin d'apporter l'espoir d'un avenir où l'amyotrophie spinale sera une maladie guérissable.Cette année, la Tour CN et la Tour de Montréal seront illuminées en violet et en orange, les couleurs de Cure SMA Canada, le 19 août de 18h30 à 7h00 le 20 août, en l'honneur des personnes vivant avec l'amyotrophie spinale et à la mémoire de celles que nous avons perdues. Ensemble, nous sommes forts de notre engagement à soutenir les familles touchées par l'amyotrophie spinale.Non traitée, l’AMS est une maladie neuromusculaire dégénérative qui entraîne une faiblesse dans tout le corps. Une personne touchée par l’AMS a des capacités cognitives normales. Soyons forts ensemble en souvenir de ceux que nous avons perdus à cause de cette maladie et pour ceux qui attendent toujours un accès au traitement.Cure SMA Canada est l'organisme de bienfaisance national du Canada qui soutient les familles touchées par la SMA en finançant des projets de recherche essentiels, des initiatives de défense et de soutien telles que des camps, des trousses pour les nouveaux diagnostiqués et des conférences d'information. Cure SMA Canada fournit une aide pour aujourd'hui et un espoir pour demain.Merci aux équipes de gestion de la Tour de Montréal et de la Tour CN de soutenir Cure SMA Canada afin de sensibiliser le public à l'amyotrophie spinale.Vous pouvez voir la Tour CN sur la caméra en direct www.cntower.ca/#earthcam.Encore mieux! Prenez une photo de famille devant celle-ci! Nous serions ravis de la voir, amenez votre famille et vos amis! ... See MoreSee Less

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Cure SMA Canada

24 hours ago

Cure SMA Canada
We are excited to host a Real Talk Community Forum at the 2022 Cure SMA Canada National Conference, in partnership with Roche Canada! We’re bringing together Canadians living with and caring for loved ones with #SMA to discuss important topics within the #SMACommunity. Join Rachel O’Hagan, Desiree Parisien, Holli Vanderwyk, andBen Bourne Flosman as they share their personal experiences and insights about #SMAAwareness,#MentalHealth, #DisabilityAwareness, and more. Learn more and register to join us in Montreal on August 21 byvisiting: www.eventbrite.ca/e/2022-conference-nationale-dams-2022-national-sma-conference-tickets-373994657087 #SMAMyWay #CureSMA #RealTalkSMA #SMAAwarenessMonth —Nous sommes ravis de tenir le forum communautaire Real Talk, qui aura lieu lors de la conférence nnationale 2022 de Cure SMA Canada, en partenariat avec Roche Canada!Nous réunissons des Canadiens qui vivent avec l’#AmyotrophieSpinale ou qui prennent soin d’un procheatteint d’AS afin de discuter de sujets importants au sein de la communauté de l’AS. Venez rencontrer Rachel O’Hagan, Desiree Parisien, Holli Vanderwyk, and Ben Bourne Flosman qui feront part de leurs expériencespersonnelles et de leurs réflexions sur la #sensibilisationAS, la #santémentale, la #défensedespatients,l’#accessibilité, et plus encore. Pour en savoir plus et vous inscrire afin de vous joindre à nous à Montréal le 21 août, consultez le liensuivant : www.eventbrite.ca/e/2022-conference-nationale-dams-2022-national-sma-conference-tickets-373994657087 #lASmaréalité #CureSMA #RealTalkSMA #MoisdelasensibilisationAS ... See MoreSee Less

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Cure SMA Canada

2 days ago

Cure SMA Canada
Come join us at the Cure SMA Canada national conference! There's still time to register! Aug. 19-21 at the Le Centre, Sheraton, Montreal! Free of charge to all SMA Families and their supporters! Final agenda packed with information and support! ... See MoreSee Less

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Cure SMA Canada

2 weeks ago

Cure SMA Canada
Cure SMA Canada would like to thank Biogen Canada, Novartis Canada, and Roche Canada for their generous sponsorship for SMA Family Camp! ... See MoreSee Less

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Cure SMA Canada

2 weeks ago

Cure SMA Canada
Have you registered for Cure SMA Canada’s National Conference yet? Check out the draft agenda!! ✨Thank you to our very generous conference sponsors! Novartis, Roche, and Biogen. 💜 Conference registration linkwww.eventbrite.ca/e/2022-conference-nationale-dams-2022-national-sma-conference-tickets-373994657...🧡 Link for hotel registrationwww.marriott.com/event-reservations/reservation-link.mi?id=1656613545530&key=GRP&app=resvlink ... See MoreSee Less

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