Welcome to the website of Families of Spinal Muscular Atrophy Canada Society

JOIN OUR NEXT FUNDRAISER ON MAY 17TH

FAMILIES OF SMA CANADA SOCIETY

103-7134 VEDDER RD.
CHILLIWACK, BC V2R 4G4

 

TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363

QUESTIONS

Please email Susi Cander Wyk at head office

FSMACAN@TELUS.NET

FSMAC IS THE NATIONAL CHARITY DEDICATED TO SUPPORTING CANADIANS AFFECTED BY SPINAL MUSCULAR ATROPHY
and supporting research in our quest to find a cure or treatment for SMA.

If you or a family member are newly diagnosed, click New Diagnosis for directions on how to access help.

NEWS

Cure SMA Canada speaks out for the rights of Canadians affected by Spinal Muscular Atrophy to access treatment.

Cure SMA Canada speaks out for the rights of Canadians affected by Spinal Muscular Atrophy to access treatment. Please share. All patients affected by SMA in Canada have a need and a right to treatment! Youtube Video

Patient Information Update – Spinraza

Cure SMA Canada – Patient Community Announcement Cure SMA Canada is very happy to announce that the pCPA, provinces and Biogen have FINALLY come to an agreement for the first submission of Nusinersen/Spinraza for review.  We are pleased to confirm that all patients with type 1 in all jurisdictions in Canada will be able to…