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BOARD OF TRUSTEES

ANIELLO CAVALLARO (QC)

JENNA STEWART (ON)

SARAH CHEUNG (BC)

ANGELA MOSCO (AB)

JANIK DIONNE (NB)

SCIENTIFIC ADVISORY BOARD

click here for more information.

QUESTIONS

Please email Susi Vander Wyk at head office

CURESMA@TELUS.NET

CURE SMA CANADA

103-7134 VEDDER RD
CHILLIWACK, BC V2R 4G4

TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363

NATIONAL OFFICE

SUSI VANDER WYK
Executive Director
curesma@telus.net

ROBERT MARKS
Executive Coordinator
sma_can@telus.net

NICOLE LAMONT
National Communications Associate
nicole@curesma.ca

CHAPTERS

BC CHAPTER PRESIDENT

ANNE BELANGER
anne@curesma.ca

QUEBEC CHAPTER PRESIDENTS

ISABELLE BOUDREAULT
isabelle.boudreault@aircanada.ca
AMY LOIGNON
pikoloca@yahoo.ca

Cure SMA Canada

24 hours ago

What a powerful story!

"First baby in Canada identified with SMA using newborn screening: given early treatment, ‘loves to move’"

www.cheo.on.ca/en/news/first-baby-in-canada-identified-with-sma-using-newborn-screening.aspx ...

First baby in Canada identified with SMA using newborn screening

l.facebook.com

Dec. 2, 2020—OTTAWA— When Newborn Screening Ontario diagnosed spinal muscular atrophy (SMA) in Aidan Deschamps’ bloodspot, he became the first baby in Canada identified with the genetic, neuromuscular condition through a provincial newborn screening program.

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Cure SMA Canada

2 days ago

Cure SMA Canada's National Virtual Conference to be held Dec 10-13, 2020 🧡💜

This is a wonderful opportunity to learn about the latest and greatest in care and treatment of SMA! We will be offering multiple presentations by the professional and SMA community on the following topics and more!

* Grief session - Life after the loss of a child
* Treatment information - Zolgensma, Risdiplam and Spinraza
* Canadian research project - The importance of Canadian research!!
* Nutrition - The SMA diet
* Orthopedic Surgeon - caring for the back and bones
* Respirologist - Support those lungs!
* Physiotherapy
* Newborn screening
* SMA family camp - fun family support
* Caring for the caregiver
* Coping with covid isolation
* Sexual health - for teen and adult women affected by SMA
* Is there anyone out there for me? Dating for teens and adults affected by SMA
* more topics and speakers!

Thank you to our wonderful sponsors for this event!
Our Diamond sponsors - Novartis
Our Platinum sponsors - Roche
Our Gold sponsors - Biogen

We will hold most topics in both official languages.

Learn more and register ✨
www.eventbrite.com/e/cure-sma-canada-2020-winter-conference-tickets-126880839005 ...

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Cure SMA Canada

3 days ago

Looking for some Christmas cards? These beautiful cards were created by Cristina (Beautiful Complicated) who is an artist with SMA II. Thank you for sharing your pieces and story with us Cristina, and for donating a portion of proceeds to our organization. We are so grateful for your support! ...

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Cure SMA Canada

3 days ago

Today is #GivingTuesday! We would love if you would support Cure SMA Canada this giving season. Whether it’s sharing our message or donating to our organization, you are helping us support Canadian families affected by SMA and helping us fund critical research. Thank you!!! 🧡💜 curesma.ca/ways-to-give ...

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Cure SMA Canada

6 days ago

Cure SMA Canada updated their info in the about section.

www.facebook.com

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