Contact Us

BOARD OF TRUSTEES

ANIELLO CAVALLARO (QC)

JENNA STEWART (ON)

SARAH CHEUNG (BC)

ANGELA MOSCO (AB)

JANIK DIONNE (NB)

SCIENTIFIC ADVISORY BOARD

click here for more information.

QUESTIONS

Please email Susi Vander Wyk at head office

CURESMA@TELUS.NET

CURE SMA CANADA

103-7134 VEDDER RD
CHILLIWACK, BC V2R 4G4

TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363

NATIONAL OFFICE

SUSI VANDER WYK
Executive Director
curesma@telus.net

ROBERT MARKS
Executive Coordinator
sma_can@telus.net

CHAPTERS

BC CHAPTER PRESIDENT

ANNE BELANGER
anne@curesma.ca

QUEBEC CHAPTER PRESIDENTS

ISABELLE BOUDREAULT
isabelle.boudreault@aircanada.ca
AMY LOIGNON
pikoloca@yahoo.ca

ONTARIO CHAPTER PRESIDENTS

Nicole Lamont
nicole@curesma.ca

ALBERTA CHAPTER PRESIDENTS

Justin Palmer
palmertoe@me.com

SASKATCHEWAN REPRESENTATIVE FOR CSMAC

Desiree Parisien
desiree@curesma.ca

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Cure SMA Canada

3 months ago

Thank you to Bryce, Kyle, and Jared, for sharing your stories. We will never stop fighting until you and ALL patients have access to treatment. ... See MoreSee Less

Continued Lack of Treatment Access for Adults with SMA Is Causing Hardship - Health Insight

www.healthinsight.ca

Approved treatment exists for Canadians with this progressive neuromuscular disease, but most adults can’t access it.

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Cure SMA Canada

3 months ago

A fun and important research opportunity, for kids with SMA and even their siblings! Email oskoui.lab@muhc.mcgill.ca for more information. ... See MoreSee Less

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Cure SMA Canada

3 months ago

It is with great regret that we announce the negative recommendation by CADTH for adult access to Spinraza.We felt confident that our Canadian government would understand the depth of the burden of disease to the patient and family and the benefit of treatment. As a community we are saddened to hear this response.As a community we take a moment to grieve this decision and then lift our heads up and carry on! This is not the end of it!We simply will not take no for an answer.Stay tuned for what we will do next in our advocacy. WE WILL CONTINUE TO FIGHT FOR OUR ADULT PATIENTS!Cure SMA Canada will see this through until all of our patients are able to access life changing treatment.—-C'est avec grand regret que nous annonçons la recommandation négative de CADTH concernant l'accès des adultes à Spinraza.Nous étions convaincus que notre gouvernement canadien comprendrait l'ampleur du fardeau de la maladie pour les patients et leurs familles et les avantages du traitement. En tant que communauté, nous sommes attristés d'entendre cette réponse.En tant que communauté, nous prenons un moment pour faire le deuil de cette décision, puis nous relevons la tête et allons de l'avant ! Ce n'est pas fini !Nous n'accepterons tout simplement pas un refus comme réponse.Restez à l'écoute pour savoir ce que nous ferons ensuite dans notre plaidoyer. NOUS CONTINUERONS A NOUS BATTRE POUR NOS PATIENTS ADULTES !Cure SMA Canada ira jusqu'au bout, jusqu'à ce que tous nos patients puissent avoir accès à un traitement qui changera leur vie. ... See MoreSee Less

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Cure SMA Canada

3 months ago

An event full of dancing, good food, and supporting the SMA community! ... See MoreSee Less

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Cure SMA Canada is in Montreal, Quebec.

3 months ago

Final day of the conference. What an amazing weekend of learning about SMA care, treatment approval and access, and building connections with others in the community. There is so much hope for what the future holds for SMA in Canada 🧡💜 ... See MoreSee Less

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