Yukon Territories treatments

ROCHE: Evrysdi – Risdiplam

Available:

BIOGEN: Nusinersen – Spinraza

Available:

Initiation Criteria
1. Pre-symptomatic patients with two or three copies of the SMN2 gene, OR

2. Had the disease for <6 months, two copies of SMN2, and symptom onset after the first week after birth and on, or before seven months of age; OR 3. Patients under the age of 18 with symptom onset > 6 months of age, and never achieved the ability to walk independently.†

Stopping Criteria
1. For those pre-symptomatic at initiation: no improvement on HINE-2, CHOP INTEND, or HFMSE, OR

2. For those symptomatic at initiation: no improvement in HINE-2, CHOP INTENT, or HFMSE, OR

3. Permanent invasive ventilation required

NOVARTIS: Onasemnogene abeparvovec – Zolgensma

Available

LATEST NEWS

SPACES

SPACES is a first-of-its-kind musical collaboration created for everyone with a disability by the SMA community. Each creative component of the program – song, music video and album art – was led by someone with SMA. It uses the universal language of music to elevate the many voices of this community and celebrate our individuality…

August is Spinal Muscular Atrophy (SMA) Awareness month!

August is Spinal Muscular Atrophy (SMA) Awareness month! Cure SMA Canada spreads awareness throughout Canada to bring hope to a future where SMA is a curable disease.   This year, the CN Tower and the Montreal Tower will be lit up in purple and orange, the Cure SMA Canada colours, on August 19 from 6:30pm…

Activist Sammy Cavallaro awarded Quebec National Assembly Medal of Honour

We are so so proud of the achievements of Sammy Cavallaro!  Congratulations on your award Sammy!  Thank you to the Cavallaro family for your dedication to improving life for people affected by SMA in Canada! You teach us all to make a change where one is needed.  Very deserving of the award, we are so…

CURE SMA CANADA

103-7134 VEDDER RD.
CHILLIWACK, BC V2R 4G4

 

TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363

QUESTIONS

Please email Susi Vander Wyk at head office

CURESMA@TELUS.NET

>