Spinraza : Next steps

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Spinraza : Next steps

Spinraza next steps. The following diagram outlines costs and benefits.

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Cure SMA Canada

3 weeks ago

This awesome fundraiser is tomorrow! Thank you for raising awareness and funds for Cure SMA. We hope everyone who attends enjoys their time and their tattoo!

www.rmoutlook.com/article/samurai-artists-fighting-against-sma-20180906 ...

Samurai artists fighting against SMA - Rocky Mountain Outlook

rmoutlook.com

CANMORE – The artists of New World Samurai are working to raise funds to help support the treatment of spinal muscle atrophy (SMA) through a one-day fundraiser called Flowers for Callen, this Saturday (Sept. 8). Event organizer and tattoo artist Jesse James Cartier has a deeply personal connection...

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Cure SMA Canada

4 weeks ago

Lilah is 2 and a half years old with SMA type 1, and was diagnosed at 5 months of age. Lilah has a tracheostomy and is on a ventilator, but that doesn't stop her! She loves to color, make music, dance, play with baby dolls, and ride around in her wheelchair. Lilah does not like being told no, puppy dogs, and the summer heat. She is receiving Spinraza and continues her fight everyday. She can now breathe on her own for 1 hour a day! She uses her big blue eyes to communicate, is learning sign language, and continues her fight against SMA.
#smaawareness #curesmacanada ...

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Cure SMA Canada

4 weeks ago

DID YOU KNOW?
Spinal Muscular Atrophy type 4 is also known as adult onset, and is much less common then the other types. Symptoms generally begin after age 35. It is typically characterized by insidious onset and very slow progression. The muscles used for swallowing and respiratory function are rarely affected. Parents with SMA typically lose function over time. Loss of function can occur rapidly in the context of a growth spurt or illness, much more gradually. ...

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Cure SMA Canada

1 month ago

DID YOU KNOW?
SMA type 3 is often referred to as Kugelberg-Welander, or Juvenile Spinal Muscular Atrophy. Children can present symptoms as early as 1 year of age, or as late as adolescence. A patient with type 3 can stand alone and walk, but may show difficulty with walking along their journey. They may fall more frequently once they begin walking, and may have troubles getting up from a seated position on the floor. With type 3, a fine tremor can be seen in the outstretched fingers , but tongue fasciculations are seldom seen.
#smaawareness #curesmacanada ...

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Cure SMA Canada

1 month ago

Follow the link and watch this coverage on Spinraza
#spinraza4all #curesmacanada

vancouverisland.ctvnews.ca/mobile/video?clipId=1367014&binId=1.1180928&playlistPageNum=1#_gus&_gu... ...

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vancouverisland.ctvnews.ca

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