Spinraza : Next steps

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Spinraza : Next steps

Spinraza next steps. The following diagram outlines costs and benefits.

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3 weeks ago

The Vander Wyk family and friends participating in the Rebecca Run! 🏃🏃‍♀️👩‍🦼👨‍🦽The Rockin and Rollin Crew! What is YOUR team name? Join us!!! All for research, research for all. Register at rebeccarun.ca ...

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Cure SMA Canada

3 weeks ago

Shout out to Team Biogen for registering with a team of 25 🎉Your participation supports initiatives that change lives in the SMA Community. Thank you to all the teams who have registered for the Rebecca Run. Interested in joining the run? Register at www.rebeccarun.com ...

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Cure SMA Canada

3 weeks ago

Weekend Wellness! ✨Therapeutic recreation workshops focussed on mental health and wellness for the entire family! Bloom is partnering with Cure SMA Canada to create personalized mental health and wellness workshops for the Cure SMA Canada community! These workshops are for the entire family, where all family members are welcome to participate. Join us to partake in activity-based learning to gain an understanding of different ways to cope with mental health and improve well-being through different leisure activities. Sessions will focus on coping mechanisms, mindfulness, leisure education, and more! Activities like art therapy, chair yoga, and meditation will all be included!Date and time 📌Every Sunday and July at 2 PM Eastern on Zoom. Program will be a drop in service! Contact Julianna if you have questions Julianna.cavallaro@hotmail.com Zoom linkconcordia-ca.zoom.us/j/88923214657?pwd=dCtXYnBZRnpNdEtjb3o4a2oxRHhUQT09 ...

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Cure SMA Canada

4 weeks ago

Cure SMA Canada has been working hard on patient advocacy for access to treatment and ensuring the needs of the individual patient and caregiver are understood and met. We need to hear from the newly diagnosed to those that have been in the SMA community for many years.We are very hopeful for a high amount of participation from the SMA community for this initiative.Why it matters:⭐️ Cure SMA Canada wants to improve our ability to meet the needs of Canada's SMA community⭐️ The results will be compiled and documented to improve understanding and ultimately quality of knowledge and care in Canada for our patients and caregivers⭐️To understand the needs and implement the sharing of these needs with government to affect change to the standard of care for SMA patients.⭐️ To understand the gaps and make improvements to the quality of information available to the SMA community.Please take the time to take the survey below, the time required is only approximately 15 minutes. We understand your free time is precious, your time spent will result in the improvement of the knowledge and experience of Canada's SMA community. AWESOME INCENTIVE! 🎉All participants will be entered into a draw for a trip for 2 to attend the international SMA conference in June 2022 which will be held in Disneyland, California where the winner will be able to meet other families, gain in knowledge of care and research and have a ton of fun doing it at Disneyland!Please click on the links below to participate in the survey ✨ENGLISHwww.surveymonkey.com/r/Cure_SMA_2021_ENFRENCHfr.surveymonkey.com/r/Cure_SMA_2021_FR ...

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Cure SMA Canada

1 month ago

Thank you to our 2021 Gold level sponsors for the Rebecca Run: Biogen, Novartis, Roche. 🎉 Thank you for your continued support of Cure SMA Canada - the Spinal Muscular Atrophy community of Canada! 🧡💜 ...

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Spinraza : Next steps

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