Spinraza : Next steps

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Spinraza : Next steps

Spinraza next steps. The following diagram outlines costs and benefits.

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Cure SMA Canada shared a link.

2 days ago

Oral Drug Increases SMN Protein in Spinal Muscular Atrophy

medscape.com

Preliminary results of the FIREFISH study show a 6.5-fold increase in a protein that's diminished in babies with spinal muscular atrophy.

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Cure SMA Canada shared Rick Fraser's video.

2 days ago

Rick Fraser
I read my members statement about a constituent, whose son suffers from spinal muscular atrophy. He is trying to get access to life saving medication. I am asking the Minister of Health to take half an hour to meet with Mrs. Palmer, and learn more about her case. If you agree with me, please share and help make an impact for this constituent and her son. #ableg #healthcare #healthministry ...

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Cure SMA Canada shared a post.

3 days ago

More flights, more cities, more meetings, more reality shots for government officials. The pressure for the decision to approve access to the only treatment available for SMA is continuing daily. They will hear us even if we have to make them hear us one at a time, face to face. With or without tears on both sides.
This IS reality for our SMA families. YOU WILL HEAR US! ...

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Cure SMA Canada

3 days ago

“New guidelines help define best treatment timeline for SMA infants” ...

smanewstoday.com

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4 days ago

The Isolation of Special Needs Parents ~ Raising the Extraordinary

raisingtheextraordinary.com

Special needs parenting comes with a whole host of emotions that can be difficult to deal with. One of the most difficult for so many of us is the isolation we feel. When our children are diagnosed, we tend to pour ourselves into the diagnosis. We research, talk to experts, doctors, therapists, spec...

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Spinraza : Next steps

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