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  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
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    • Fundraising
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  • Care
    • Treatments
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Author Archives: mollyocean

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Novartis Community Statement – CADTH RECOMMENDATION & ACCESS TO ZOLGENSMA

Member UpdateBy mollyoceanApril 2, 2021

March 30, 2021   As requested, and as part of our ongoing commitment to keep you informed of important milestones regarding Zolgensma® (onasemnogene abeparvovec), I am writing on behalf of…

Media Release

Member UpdateBy mollyoceanFebruary 25, 2021

 First baby in Canada identified with SMA using newborn screening: given early treatment, ‘loves to move’ Dec. 2, 2020—OTTAWA— When Newborn Screening Ontario diagnosed spinal muscular atrophy (SMA) in Aidan…

Disability Tax Credit Amid the COVID-19 Pandemic

Member UpdateBy mollyoceanFebruary 25, 2021

The COVID-19 pandemic, as you may well know, is taking a particularly heavy toll on Canadians with disabilities. So now, more than ever getting approved for the Disability Tax Credit…

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