National SMA Conference!

  Come Join Us at the National SMA Conference! February 27 – 29, 2020 Hyatt Regency, King St., Toronto, ON Receive information and support for SMA Patients and Caregivers ·        Learn about the latest in SMA treatment access in Canada ·        Understand the Canadian pharmaceutical access process ·        Learn about Canadian research projects and how they impact the…

Nova Scotia broadens access to SPINRAZA™ (nusinersen injection)Cure SMA Canada is recognized for our contribution to the Canadian government’s understanding of the impact of SMA

Cure SMA Canada is recognized for our contribution to the Canadian government’s understanding of the impact of SMA and played a major role in the associated changes to access to treatment brought by this contribution. Thank you to all of those who participated and supported Cure SMA Canada initiatives!  Together we truly do make a…

Biogen Press Release

Press Release   NURTURE study shows pre-symptomatic Spinal Muscular Atrophy (SMA) infants treated with SPINRAZA™ (nusinersen injection) attained positive results ▪ Treatment with SPINRAZA™ resulted in survival of 100 percent of infants and none requiring permanent ventilation ▪ Recently published outcomes include motor milestones achieved in 100 percent of infants sitting withoutsupport and 88 percent…

Canada’s Annual National SMA Awareness Day

Dear Cure SMA Canada members and supporters, We have an exciting national event that you can look forward to and participate in!! Sunday, August 18, 2019 will be Canada’s Annual National SMA Awareness Day. This national event will be celebrated in unison across the Canada. Synchronized Lighting Times Newfoundland Time Zone 6:30 Atlantic Time Zone…

Patient Community update.

Dear Canada’s SMA Community and our supporters, Thank you for your continued trust and support as we inch our way through the process of access to treatment here in Canada. We are, and continue to work hard to achieve what we set out to do from the very beginning, to advocate for access for all…

Ontario Expands Coverage of Spinraza!!

Ontario Government got it right!! We at Cure SMA Canada are very happy and proud to announce that the government of the province of Ontario has communicated with us that they have come to a mutually agreeable decision to approve reimbursement for Ontario’s Spinal Muscular Atrophy patients. As a follow-up to the national review process…