Cure SMA Canada Conference

August 19 – 21, 2022

Montreal, Quebec

Le Centre Sheraton Montréal

1201 Blvd  Rene-Levesque West

Knowledge is power! Like a snowball racing down a hill, the world of SMA grows quickly in terms of what there is to learn.

Learn about the latest and greatest in Spinal Muscular Atrophy research, treatment and care.

Meet other Canadian SMA families!

More information coming soon.

If you require assistance to attend, send a scholarship request to

**This conference will be offered with English and French speakers with full translation services.

See you at the opening Meet and Greet on Friday August 19 at 5:00pm where we will enjoy a true Montreal meal with delicious Montreal smoked meat, rye bread, poutine, and some wonderfully delicious pasta and salad dishes. 

Join the symposium right after the meet and greet at 6:00pm where we will have adult information in one meeting room and pediatric in another.

Parking will be paid for by Cure SMA Canada.


We are also offering a child care room with volunteers.

Conference preregistration required.


Looking forward to seeing you there!


Thank you to our wonderful sponsors for supporting the Rebecca Run!

These funds will make a big difference for bettering the lives of Canadian SMA patients and their families!

Rebecca Run for Spinal Muscular Atrophy

Registration is now open for the 2022 Rebecca Run for SMA. This will be our 21st Rebecca Run for SMA as we continue to help individuals and their families living with SMA!

We are so excited to welcome you back in-person and Virtual! We invite you to join us on July 9, 2022 for our in-person 5k and kids run.

We are also offering a virtual 5k option for those who are not able to join us at Fairy Lake. A virtual run means you complete your distance on your own and can run/walk anytime, anywhere. Our virtual run can be completed anytime between July 9 – 23, 2022.

In person or virtual there are lots of ways to be a part of the Rebecca Run for SMA.

Create a team, recruit friends and family and collectively fundraise.

Together, with your help and support, we will find a cure for SMA.

We look forward to seeing you at the start line on Saturday, July 9, 2022 for the Rebecca Run for SMA.

Cure SMA Canada’s national virtual conference to be held Dec 10-13, 2020

This is a wonderful opportunity to learn about the latest and greatest in care and treatment of SMA!
We will be offering multiple presentations by the professional and SMA community on the following topics and more!

  • Grief session – Life after the loss of a child
  • Treatment information  – Zolgensma, Risdiplam and Spinraza
  • Canadian research project – The importance of Canadian research!!
  • Nutrition  –  The SMA diet
  • Orthopedic Surgeon – caring for the back and bones
  • Respirologist – Support those lungs!
  • Physiotherapy
  • Newborn screening
  • SMA family camp – fun family support
  • Caring for the caregiver
  • Coping with covid isolation
  • Sexual health – for teen and adult women affected by SMA
  • Is there anyone out there for me?  Dating for teens and adults affected by SMA
  • more topics and speakers!

Thank you to our wonderful sponsors for this event!
Our Diamond sponsors – Novartis
Our Platinum sponsors – Roche
Our Gold sponsors – Biogen

We will hold most topics in both official languages.


Knowledge is power! Learn about the latest and greatest in Spinal Muscular Atrophy research, treatment and care. Network with others!

Start :  Thursday Feb 27th 5pm

End :     Saturday  Feb 29 4pm

where:  Hyatt Regency Toronto

              370 King St W,

              Toronto, ON

              M5V 1J9

              (416) 343-1234



Sammy’s Valentine Gala

Every year it’s gotten bigger and better. We found our first treatment and now we are close to finding a cure. Join us Saturday Feb 15 at the Crown Plaza!

When: Feb 15, 2020
Time: 18:00

Where: Crown Plaza
6600 Chemin de la Côte-de-Liesse,
Montréal, QC H4T 1E3

Hotel website

Entertainment : Crystal Waters

Sneak peak


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Please email Susi Vander Wyk at head office