Cure SMA Canada’s national virtual conference to be held Dec 10-13, 2020

This is a wonderful opportunity to learn about the latest and greatest in care and treatment of SMA!
We will be offering multiple presentations by the professional and SMA community on the following topics and more!

  • Grief session – Life after the loss of a child
  • Treatment information  – Zolgensma, Risdiplam and Spinraza
  • Canadian research project – The importance of Canadian research!!
  • Nutrition  –  The SMA diet
  • Orthopedic Surgeon – caring for the back and bones
  • Respirologist – Support those lungs!
  • Physiotherapy
  • Newborn screening
  • SMA family camp – fun family support
  • Caring for the caregiver
  • Coping with covid isolation
  • Sexual health – for teen and adult women affected by SMA
  • Is there anyone out there for me?  Dating for teens and adults affected by SMA
  • more topics and speakers!

Thank you to our wonderful sponsors for this event!
Our Diamond sponsors – Novartis
Our Platinum sponsors – Roche
Our Gold sponsors – Biogen

We will hold most topics in both official languages.


Thank you to our wonderful sponsors for supporting the Rebecca Run!

These funds will make a big difference for bettering the lives of Canadian SMA patients and their families!

Virtual Rebecca Run for SMA

The global COVID-19 pandemic means that big changes are necessary to keep our community safe, which is why the 2020 Rebecca Run for SMA is going 100% virtual. Our 19-year tradition will continue!

A virtual run means  we can still run for Cure SMA Canada and help kids living with SMA.

A virtual run enables you to run on your own, anytime, anywhere, as long as you practice physical distancing.

We encourage you to stay healthy and help #flattenthecurve solo in our virtual run.

The Virtual Rebecca Run for SMA can occur anytime between July 4 – 25, 2020.

We mail your run shirt and medal directly to you and you have the ability to share your Run pictures and you can upload your run results as well. Kids registered in the Fun Run will also get their finisher memento in the mail.

​Create a virtual team, recruit friends and family, collectively fundraise with more focus and urgency than ever before.

Since we started the run in 2002, we have raised more than $2.8 million for Cure SMA Canada in support of children and families living with SMA.

Join us this July at the Virtual Rebecca Run for SMA and help us help kids and their families living with SMA.


Knowledge is power! Learn about the latest and greatest in Spinal Muscular Atrophy research, treatment and care. Network with others!

Start :  Thursday Feb 27th 5pm

End :     Saturday  Feb 29 4pm

where:  Hyatt Regency Toronto

              370 King St W,

              Toronto, ON

              M5V 1J9

              (416) 343-1234




Sammy’s Valentine Gala

Every year it’s gotten bigger and better. We found our first treatment and now we are close to finding a cure. Join us Saturday Feb 15 at the Crown Plaza!

When: Feb 15, 2020
Time: 18:00

Where: Crown Plaza
6600 Chemin de la Côte-de-Liesse,
Montréal, QC H4T 1E3

Hotel website

Entertainment : Crystal Waters

Sneak peak


103-7134 VEDDER RD.


TOLL FREE 855.824.1277

BC 604.824.1277

FAX 604.824.1363


Please email Susi Vander Wyk at head office



Understanding Bulbar Function: Chloe’s Story

This video was created with the intention of educating SMA families, and the general public, about the important role bulbar function testing plays in the treatment journey of a child living with SMA. With the help of the Sousa family we were able to convey Chloe’s journey in a fun and innovative way while tackling…

August 19 – 21, 2021 Virtual Conference Agenda

Health Canada approves Risdiplam!

Treatment potential for our pediatric and adult patients! Dear Canada’s SMA community, Cure SMA Canada is happy to share that approval has been issued by Health Canada for Risdiplam for SMA patients 2 months of age and older. Risdiplam is an oral treatment from Roche that treats SMA by increasing the SMN levels. The convenience…