Petition for BC, MB, PE, NL, NS Health Ministries

Imagine what it was like at SMA camp west this year.

As we looked around the lunch room, we saw how many of the SMA patients were accessing treatment.  We were all so very happy for them!  To hear stories of how life has changed, how they are now able to do things they haven’t for years.  “I can stand longer, to transfer.” “I can open a bag of chips by myself.” “I can cut my own food.” “I can last a whole day at school without tiring out.”  “I can walk across a swinging bridge by myself.”
These were all wonderful to hear, we were all so happy for them all!

But then the eyes shift to the others.  They were smiling through painful tears.  So happy for the others, so exhausted of worry, fear and advocacy.  the families that had access felt guilt for their wonderful future but feel frustrated and angry for the ones that are still waiting.  Its NOT FAIR!!

We took a picture together to show the ones still waiting and the support of all of the rest of the family and friends that are accessing behind.
We are still a family unit.  If we all aren’t accessing, we can’t truly celebrate.

Please, please help us make noise to the the remaining provinces in support of the ones who are still waiting.

Please, please sign and share far and wide.  All of Canada needs to stand behind the ones left behind that unbelievably are still waiting!

Sincerely,
Susi Vander Wyk
Executive Director
Cure SMA Canada