Petition for BC, MB, PE, NL, NS Health Ministries Please share this important petition! Imagine what it was like at SMA camp west this year. As we looked around the lunch room, we saw how many of the SMA patients were accessing treatment. We were all so very happy for them! To hear stories of…
DAY 19
If you were to have one ability back that you have lost, what would it be?
Our Cure SMA Canada Community is proud to be loud!!
Actions completed and more action coming! I would like to update you on some recent activities of Cure SMA Canada. February 10, 2018 – Montreal – Sammy’s Valentine’s Gala was held to raise funds and awareness for Cure SMA Canada. This gala was supported and attended by representatives from Biogen and AveXis and gave the opportunity to hold…
Biogen Community Update – December 22, 2017
Biogen Community Update – December 22, 2017 Dear members of the SMA community, In response to your request for information, we would like to provide you with an update on the health technology assessment reviews for SPINRAZA™ (nusinersen) conducted by the Common Drug Review (CDR) and L’Institut national d’excellence en santé et en services sociaux…