Dear Canada’s SMA community,
Navigating life with SMA can often be challenging – but also rewarding. As a community, we are always looking to lift one another up and share real stories to ensure families know they are not alone.
That is why we are excited to share a recent launch of a new website and support hub for the SMA community – SMA My Way Canada
SMA My Way Canada is part of a global community. The website offers a platform to learn from and engage with people sharing real and honest experiences, stories and perspectives of those living with SMA, as well as their families, friends, and caregivers.
Stories shared by the website’s contributors cover a number of areas important to our community including accessibility, adulting, relationships, hobbies, parenting and everyday life. You can learn more on the website and from its contributors about:
● Tips and tricks for navigating international travel
● Planning for accessibility changes and challenges in the home as your child grows older
● Breaking down stereotypes surrounding sexual intimacy and relationships for those living with a disability
● The importance of finding ‘me-time’ as a caregiver
And much more!
Cure SMA Canada welcomes this website as a community support tool for all those affected by SMA in Canada. We encourage you to visit SMA My Way Canada to learn more and engage with contributor stories and experiences. We certainly will be!
Susi Vander Wyk
Cure SMA Canada