News

Government of Canada improves access to affordable and effective drugs for rare diseases In Canada, one out of twelve people—many of whom are children—has a rare disease. There are thousands…

SPACES is a first-of-its-kind musical collaboration created for everyone with a disability by the SMA community. Each creative component of the program – song, music video and album art -…

August is Spinal Muscular Atrophy (SMA) Awareness month! Cure SMA Canada spreads awareness throughout Canada to bring hope to a future where SMA is a curable disease.   This year,…

We are so so proud of the achievements of Sammy Cavallaro!  Congratulations on your award Sammy!  Thank you to the Cavallaro family for your dedication to improving life for people…

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COVID has proven we can quickly set up infrastructure without long-term clinical data. It’s time to do the same with rare diseases, says Durhane Wong-Rieger, president and CEO of Canadian…

Treatment potential for our pediatric and adult patients! Dear Canada’s SMA community, Cure SMA Canada is happy to share that approval has been issued by Health Canada for Risdiplam for…

Families of Alberta children suffering from spinal muscular atrophy (SMA) may now be eligible to receive funding for gene replacement therapy treatment. Alberta’s government is working with Novartis Pharmaceuticals Canada…

 SMA Data update with Biogen.   Dear members of the SMA community, Following your request for updates regarding new SMA data in adult patients, we wanted to share that a…