Monthly Archives: October 2018

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Cure SMA Canada speaks out for the rights of Canadians affected by Spinal Muscular Atrophy to access treatment.

Member UpdateBy ebesso October 18, 2018

Cure SMA Canada speaks out for the rights of Canadians affected by Spinal Muscular Atrophy to access treatment. Please share. All patients affected by SMA in Canada have a need and a right to treatment! Youtube Video

Patient Information Update – Spinraza

Member Update, Research NewsBy ebesso October 4, 2018

Cure SMA Canada – Patient Community Announcement Cure SMA Canada is very happy to announce that the pCPA, provinces and Biogen have FINALLY come to an agreement for the first submission of Nusinersen/Spinraza for review. We are pleased to confirm that all patients with type 1 in all jurisdictions in Canada will be able to…