Dear Canada’s SMA Community and our supporters, Thank you for your continued trust and support as we inch our way through the process of access to treatment here in Canada. We are, and continue to work hard to achieve what we set out to do from the very beginning, to advocate for access for all…
Ontario Government got it right!! We at Cure SMA Canada are very happy and proud to announce that the government of the province of Ontario has communicated with us that they have come to a mutually agreeable decision to approve reimbursement for Ontario’s Spinal Muscular Atrophy patients. As a follow-up to the national review process…
In response to yesterday’s wonderful announcement that the province of Ontario will be providing access to Spinraza, Biogen has provided a community statement. We at Cure SMA Canada would like to confirm that we will continue to advocate for Canada’s remaining patients to be able to access treatment. The frustration of Canada’s approval process is…
How does it feel to be able to access a life saving treatment and know others aren’t able to?
How has the experience of loss of function affected your family?
If you were to have one ability back that you have lost, what would it be?
Do you feel older patients should have the same opportunities as younger?
What changes/ improvements would you hope to see by accessing Spinraza?
How would you feel if the gov’t decides to NOT approve reimbursement for your type of SMA?
How has the fight for treatment impacted the Cure SMA Canada organization?