CADTH patient input form

Patient Input Template for CADTH CDR and pCODR Programs Name of the Drug and Indication Spinraza (nusinersin) for Spinal Muscular Atrophy Name of the Patient Group Canadian Organization for Rare Disorders and Cure SMA Canada Author of the Submission Durhane Wong-Rieger and Susi Vander Wyk Name of the Primary Contact for This Submission Durhane Wong-Rieger…

A picture is worth 1000 words

These photos were recently sent to Cure SMA Canada from James Radke, President at Zeal Access Inc. with the caption, “A picture is worth 1000 words”. Susi Vander Wyk speaks to a panel of various levels of government officials. In a room filled with representives of various government bodies, drug companies, health industry, and reps…

Cure SMA Canada has been working feverishly in our fight for broad access to treatment. 

Dear Cure SMA Canada Community,    Cure SMA Canada has been working feverishly in our fight for broad access to treatment.   A short but important update in these meetings and activities:  The Pan Canadian Pharmaceutical Alliance (pCPA) has moved Spinraza to the list of drug products that are under active negotiation.  Now is the right time for…