DAY 7

Dear Canadian Government, The Spinal Muscular Atrophy (SMA) patient community has been fighting a very serious battle to access Spinraza, the only treatment that has ever been developed for this life limiting and progressive disease. We have been in a life or death battle for the past 2 years. Over 40 other countries have already…

DAY 6

Dear Canadian Government, The Spinal Muscular Atrophy (SMA) patient community has been fighting a very serious battle to access Spinraza, the only treatment that has ever been developed for this life limiting and progressive disease. We have been in a life or death battle for the past 2 years. Over 40 other countries have already…

DAY 5

Dear Canadian Government, The Spinal Muscular Atrophy (SMA) patient community has been fighting a very serious battle to access Spinraza, the only treatment that has ever been developed for this life limiting and progressive disease. We have been in a life or death battle for the past 2 years. Over 40 other countries have already…

DAY 4

Dear Canadian Government, The Spinal Muscular Atrophy (SMA) patient community has been fighting a very serious battle to access Spinraza, the only treatment that has ever been developed for this life limiting and progressive disease. We have been in a life or death battle for the past 2 years. Over 40 other countries have already…

DAY 3

Dear Canadian Government, The Spinal Muscular Atrophy (SMA) patient community has been fighting a very serious battle to access Spinraza, the only treatment that has ever been developed for this life limiting and progressive disease. We have been in a life or death battle for the past 2 years. Over 40 other countries have already…

DAY 2

Dear Canadian Government, The Spinal Muscular Atrophy (SMA) patient community has been fighting a very serious battle to access Spinraza, the only treatment that has ever been developed for this life limiting and progressive disease. We have been in a life or death battle for the past 2 years. Over 40 other countries have already…

DAY 1

Dear Canadian Government, The Spinal Muscular Atrophy (SMA) patient community has been fighting a very serious battle to access Spinraza, the only treatment that has ever been developed for this life limiting and progressive disease.  We have been in a life or death battle for the past 2 years.  Over 40 other countries have already…

Back up power supply

Power to go! There are times when all of us want electricity when we are miles from the nearest electrical outlet. Two key components to having power on the go are a mobile digital power inverter and then a battery. Ideally, a deep cell battery will handle the constant drain and recharge that you’re going…