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  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
    • Resources
  • Events
    • Upcoming events
    • SMA Camp
  • Care
    • Treatments
  • Contact Us
  • Donate A Car
  • Donate
  • Français

Monthly Archives: July 2017

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  3. July

We have completed our submission in to CADTH!

Member Update, Research NewsBy ebessoJuly 24, 2017

We have completed our submission in to CADTH! Thanks to everyone’s support and heartfelt responses, we feel we have a very strong message to the drug review committee expressing the…

Cure SMA Canada conference update

Member UpdateBy ebessoJuly 13, 2017

This year Cure SMA Canada will be having a conference in conjunction with CORD ( Canadian Organization for Rare Diseases What to expect?Speakers from various drug companies, health care professionals,…

Tangerine top 20 finalists

Fundraiser, Member UpdateBy ebessoJuly 9, 2017

Congratulations – Cure SMA Canada has been selected as one of the #Tangerine20 contest’s Top 20 finalists. Cure SMA Canada’s mission touched our hearts, and deeply resonated with us and…

Cure SMA conference update

Member UpdateBy ebessoJuly 3, 2017

Here is what Cure SMA Canada has been working on at the conference:   – Met with all the key research groups/drug companies receiving in depth and up to the…

Approval of nusinersen/spinraza from Health Canada

Research NewsBy ebessoJuly 2, 2017

Cure SMA Canada is very happy to announce the approval of nusinersen/spinraza from Health Canada. We are very excited to confirm the approval for treatment for all types of SMA…

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