Ontario Expands Coverage of Spinraza!!
Ontario Government got it right!! We at Cure SMA Canada are very happy and proud to announce that the government of the province of Ontario has communicated with us that…
Biogen provides a statement to Canada’s SMA Community
In response to yesterday’s wonderful announcement that the province of Ontario will be providing access to Spinraza, Biogen has provided a community statement. We at Cure SMA Canada would like…
Cure SMA Canada speaks out for the rights of Canadians affected by Spinal Muscular Atrophy to access treatment.
Cure SMA Canada speaks out for the rights of Canadians affected by Spinal Muscular Atrophy to access treatment. Please share. All patients affected by SMA in Canada have a need…
Patient Information Update – Spinraza
Cure SMA Canada – Patient Community Announcement Cure SMA Canada is very happy to announce that the pCPA, provinces and Biogen have FINALLY come to an agreement for the first…
Back up power supply
Power to go! There are times when all of us want electricity when we are miles from the nearest electrical outlet. Two key components to having power on the go…
Roche Community Update
5 July 2018 Dear SMA community members, As requested, we are very pleased to share with you an update of the RG7916 programme, which has reached a number of milestones.…
Wondering how to engage? Find out below!
Things are happening!! Join in! Participate! Support Cure SMA Canada as we work hard to support your family! Spinraza update Winnipeg Health Minister Meeting – SMA Demonstration Roche update Rebecca…
Susi’s story: One mother’s fight for access to lifesaving treatment
Susi’s story: One mother’s fight for access to lifesaving treatment In March, a group of families descended on Ottawa intent on making their voices heard at Parliament Hill. They were…
Community update – Biogen Resubmits Application
Dear Cure SMA Canada Community, We’d like to bring you up to date on some developments of the Spinraza approval process here in Canada. Due to the lack of compatible…
Canadian access
If Australia and 35 other countries can come to an agreement with Biogen, SO CAN CANADA!!! WHAT IS TAKING SO LONG CANADA???!!! CANADIANS HAVE NEED ACCESS NOW!! TICK TOCK CANADA!…