CADTH patient input form
Patient Input Template for CADTH CDR and pCODR Programs Name of the Drug and Indication Spinraza (nusinersin) for Spinal Muscular Atrophy Name of the Patient Group Canadian Organization for Rare…
Our Cure SMA Canada Community is proud to be loud!!
Actions completed and more action coming! I would like to update you on some recent activities of Cure SMA Canada. February 10, 2018 – Montreal – Sammy’s Valentine’s Gala was held to raise…
A picture is worth 1000 words
These photos were recently sent to Cure SMA Canada from James Radke, President at Zeal Access Inc. with the caption, “A picture is worth 1000 words”. Susi Vander Wyk speaks…
Community update Action needed!
Dear Cure SMA Canada Community and supporters, Thank you for your continued vigilance in our many efforts for fighting for access to treatment. Cure SMA Canada has been working hard…
Please help the Canadian SMA Community!!!
Please help the Canadian SMA Community!!! Sign and share this petition for access to the only treatment for SMA. We need the Canadian government to hear us!! Please sign and…
Cure SMA Canada has been working feverishly in our fight for broad access to treatment.
Dear Cure SMA Canada Community, Cure SMA Canada has been working feverishly in our fight for broad access to treatment. A short but important update in these meetings and…
As seen on Global Drug researcher disputes rare disease medication pricing
Drug researcher disputes rare disease medication pricing.
HOW MUCH LONGER WILL SMA PATIENTS HAVE TO WAIT TO GET THE APPROVED TREATMENT?
If it were not for bad news, the spinal muscular atrophy (SMA) community in Canada would have no news at all. At least in the past couple of…
Progress Needed to Help Canadians affected with SMA
Cure SMA Canada urges timely, committed negotiations to provide coverage of first-ever and life-saving treatment for debilitating childhood disease. Cure SMA Canada, on behalf of Canadians diagnosed with Spinal Muscular…
Progress Needed to Help Canadians affected with SMA
Cure SMA Canada urges timely, committed negotiations to provide coverage of first-ever and life-saving treatment for debilitating childhood disease Cure SMA Canada, on behalf of Canadians diagnosed with…