Skip to content
Cure SMA Canada
“Help for Today, Hope for Tomorrow”
Cure SMA Canada
  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
    • Resources
  • Events
    • Calendar
    • SMA Camp
  • Care
    • Treatments
  • Contact Us
  • Donate
  • Français
  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
    • Resources
  • Events
    • Calendar
    • SMA Camp
  • Care
    • Treatments
  • Contact Us
  • Donate
  • Français

Category Archives: Member Update

You are here:
  1. Home
  2. Category "Member Update"

Latest advancements

Member Update, Research NewsBy ebessoJanuary 11, 2018Leave a comment

The Cure SMA drug pipeline is one of the primary ways we evaluate the success of our research program. The pipeline identifies the major drug programs in development, and tracks…

Community update January 4, 2018

Member UpdateBy ebessoJanuary 8, 2018Leave a comment

Dear Canadian SMA Community and its supporters, Before the Christmas holidays, our community received a shocking response from CDEC (Canadian Drug Expert Committee) of only recommending reimbursement of a small…

Biogen Community Update – December 22, 2017

Member Update, UncategorizedBy ebessoJanuary 8, 2018Leave a comment

Biogen Community Update – December 22, 2017 Dear members of the SMA community, In response to your request for information, we would like to provide you with an update on…

NOT recommending the listing of Spinraza for any type of SMA in Quebec

Member UpdateBy ebessoDecember 17, 2017Leave a comment

Dear SMA Community, We have had a response today from INESS which is the Insitut national d’excellence en sant’ et en services sociaux. They have stated that they are NOT…

Biogen responds to recommendation by the Institut national d’excellence en santé et en services sociaux (INESSS) for SPINRAZA

Canadian Nusinersen Review Process Updates, Member Update, Research NewsBy ebessoDecember 17, 2017Leave a comment

Cure SMA Canada Conference – Registration still available!!

Member UpdateBy ebessoOctober 18, 2017Leave a comment

Hyatt Regency – King St. W, Toronto, Ontario November 5, 2017 Held in conjunction with the CORD (Canadian Organization for Rare Diseases) conference which will be November 6-7, 2017 at…

update to approuval process

Member UpdateBy ebessoAugust 18, 2017Leave a comment

Dear SMA Community, We hope you are enjoying your summer. We know many of you are anxious about the approval process for Spinraza in Canada and therefore would like to…

We would like to share a very special donation from a very special family.

Member UpdateBy ebessoAugust 10, 2017Leave a comment

We would like to share a very special donation from a very special family. Chantelle and Damien Commisso recently held a toy drive in memory of their precious baby boy…

We have completed our submission in to CADTH!

Member Update, Research NewsBy ebessoJuly 24, 2017Leave a comment

We have completed our submission in to CADTH! Thanks to everyone’s support and heartfelt responses, we feel we have a very strong message to the drug review committee expressing the…

Cure SMA Canada conference update

Member UpdateBy ebessoJuly 13, 2017Leave a comment

This year Cure SMA Canada will be having a conference in conjunction with CORD ( Canadian Organization for Rare Diseases What to expect?Speakers from various drug companies, health care professionals,…

←123456→
© Copyright 2023 | Cure SMA Canada | All Rights Reserved : Designed by Ocean Marketing. A Montreal web design company
Go to Top