Community update January 4, 2018

Dear Canadian SMA Community and its supporters, Before the Christmas holidays, our community received a shocking response from CDEC (Canadian Drug Expert Committee) of only recommending reimbursement of a small subset of type 1 patients.  We are very frustrated with the decision,  it is unacceptable for an organization such as CADTH to not recognize the…

update to approuval process

Dear SMA Community, We hope you are enjoying your summer. We know many of you are anxious about the approval process for Spinraza in Canada and therefore would like to update you. To more fully understand the timing of reviews by the Common Drug Review, you will find the following link helpful: https://www.cadth.ca/nusinersen. If you…

Tangerine top 20 finalists

Congratulations – Cure SMA Canada has been selected as one of the #Tangerine20 contest’s Top 20 finalists. Cure SMA Canada’s mission touched our hearts, and deeply resonated with us and our goal to give back. Your organization rose to the top of nearly 400 inspiring entries for the #Tangerine20 contest! It was an extremely tough…