Hyatt Regency – King St. W, Toronto, Ontario November 5, 2017 Held in conjunction with the CORD (Canadian Organization for Rare Diseases) conference which will be November 6-7, 2017 at the same location. We recommend attending both conferences. SEE EVENT DETAILS Attendance Scholarships available. To register please send an email to sma_can@telus.net We highly…
Dear SMA Community, We hope you are enjoying your summer. We know many of you are anxious about the approval process for Spinraza in Canada and therefore would like to update you. To more fully understand the timing of reviews by the Common Drug Review, you will find the following link helpful: https://www.cadth.ca/nusinersen. If you…
We would like to share a very special donation from a very special family. Chantelle and Damien Commisso recently held a toy drive in memory of their precious baby boy Callen for his first birthday. They wanted to do something special for his birthday for the newly diagnosed packages we send out to our families.…
We have completed our submission in to CADTH! Thanks to everyone’s support and heartfelt responses, we feel we have a very strong message to the drug review committee expressing the needs of the entire SMA committee for effective treatment and the benefits of Spinraza to improve the lives of all persons and families affected by…
This year Cure SMA Canada will be having a conference in conjunction with CORD ( Canadian Organization for Rare Diseases What to expect?Speakers from various drug companies, health care professionals, physicians and individualswhen : November 5-6, 2017 Where: Toronto, Ontario2017/11/05 15:20:49
Congratulations – Cure SMA Canada has been selected as one of the #Tangerine20 contest’s Top 20 finalists. Cure SMA Canada’s mission touched our hearts, and deeply resonated with us and our goal to give back. Your organization rose to the top of nearly 400 inspiring entries for the #Tangerine20 contest! It was an extremely tough…
Here is what Cure SMA Canada has been working on at the conference: – Met with all the key research groups/drug companies receiving in depth and up to the minute updates on research and discussion on how to incolve Canada in future research. – Discussion with sstakeholders about bringing more clinical trials to Canada…
Dear members, We at Cure SMA Canada continue to monitor, provide input and represent our SMA community as we navigate the process of approval of Biogen’s Nusinersen/Spinraza in Canada. We’d like to update you on this process as well as prepare you for the requirements for the best possible result for our SMA patients. Through…
March 14, 2017 Dear Cure SMA Canada Members, We at Cure SMA Canada would like you to know that we understand pressures that our families are facing in terms of waiting for the regulatory approval from Health Canada of Biogen’s, Spinraza. We are advocating on behalf of those affected by SMA in Canada and will…
