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  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
    • Resources
  • Events
    • Upcoming events
    • SMA Camp
  • Care
    • Treatments
  • Contact Us
  • Donate A Car
  • Donate
  • Français

Category Archives: Member Update

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Tangerine top 20 finalists

Fundraiser, Member UpdateBy ebessoJuly 9, 2017Leave a comment

Congratulations – Cure SMA Canada has been selected as one of the #Tangerine20 contest’s Top 20 finalists. Cure SMA Canada’s mission touched our hearts, and deeply resonated with us and…

Cure SMA conference update

Member UpdateBy ebessoJuly 3, 2017Leave a comment

Here is what Cure SMA Canada has been working on at the conference:   – Met with all the key research groups/drug companies receiving in depth and up to the…

April Members update

Member UpdateBy ebessoMay 25, 2017Leave a comment

Dear members, We at Cure SMA Canada continue to monitor, provide input and represent our SMA community as we navigate the process of approval of Biogen’s Nusinersen/Spinraza in Canada. We’d…

March Members update

Member UpdateBy ebessoMay 25, 2017Leave a comment

March 14, 2017 Dear Cure SMA Canada Members, We at Cure SMA Canada would like you to know that we understand pressures that our families are facing in terms of…

Biogen Nusinersen application

Member UpdateBy ebessoMay 25, 2017Leave a comment

January 24, 2017 Dear Cure SMA Canada Members, I hope you are doing well. I would like to update you on the latest information to share about Biogen’s Nusinersen application…

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