Nova Scotia broadens access to SPINRAZA™ (nusinersen injection)
October 7, 2019 Dear members of the SMA community, As part of our promise and commitment to keep the Canadian SMA community apprised of important milestones regarding SPINRAZA™, we are…
Biogen Press Release
Press Release NURTURE study shows pre-symptomatic Spinal Muscular Atrophy (SMA) infants treated with SPINRAZA™ (nusinersen injection) attained positive results ▪ Treatment with SPINRAZA™ resulted in survival of 100 percent…
New Brunswick broadens access to SPINRAZA™ (nusinersen injection)
August 29, 2019 Dear members of the SMA community, As part of our promise and commitment to keep the Canadian SMA community apprised of important milestones regarding SPINRAZA™, we are…
Canada’s Annual National SMA Awareness Day
Dear Cure SMA Canada members and supporters, We have an exciting national event that you can look forward to and participate in!! Sunday, August 18, 2019 will be Canada’s Annual…
Patient Community update.
Dear Canada’s SMA Community and our supporters, Thank you for your continued trust and support as we inch our way through the process of access to treatment here in Canada.…
Ontario Expands Coverage of Spinraza!!
Ontario Government got it right!! We at Cure SMA Canada are very happy and proud to announce that the government of the province of Ontario has communicated with us that…
Biogen provides a statement to Canada’s SMA Community
In response to yesterday’s wonderful announcement that the province of Ontario will be providing access to Spinraza, Biogen has provided a community statement. We at Cure SMA Canada would like…
DAY 21
How does it feel to be able to access a life saving treatment and know others aren’t able to?
DAY 20
How has the experience of loss of function affected your family? https://youtu.be/6brsb5kOvMU