World Muscle Society position and advice
Covid-19 and people with neuromuscular disorders: World Muscle Society position and advice – Update 02-04-2020 Amendments to the original document text 3. What consequences does the risk of Covid-19…
SMA Data Update
SMA Data update with Biogen. Dear members of the SMA community, Following your request for updates regarding new SMA data in adult patients, we wanted to share that a…
Together in SMA with Biogen March Newsletter
Together in SMA with Biogen. Please click here to view or download the newsletter
National SMA Conference!
Come Join Us at the National SMA Conference! February 27 – 29, 2020 Hyatt Regency, King St., Toronto, ON Receive information and support for SMA Patients and Caregivers · Learn…
Nova Scotia broadens access to SPINRAZA™ (nusinersen injection)Cure SMA Canada is recognized for our contribution to the Canadian government’s understanding of the impact of SMA
Cure SMA Canada is recognized for our contribution to the Canadian government’s understanding of the impact of SMA and played a major role in the associated changes to access to…
Nova Scotia broadens access to SPINRAZA™ (nusinersen injection)
October 7, 2019 Dear members of the SMA community, As part of our promise and commitment to keep the Canadian SMA community apprised of important milestones regarding SPINRAZA™, we are…
Biogen Press Release
Press Release NURTURE study shows pre-symptomatic Spinal Muscular Atrophy (SMA) infants treated with SPINRAZA™ (nusinersen injection) attained positive results ▪ Treatment with SPINRAZA™ resulted in survival of 100 percent…
New Brunswick broadens access to SPINRAZA™ (nusinersen injection)
August 29, 2019 Dear members of the SMA community, As part of our promise and commitment to keep the Canadian SMA community apprised of important milestones regarding SPINRAZA™, we are…
Canada’s Annual National SMA Awareness Day
Dear Cure SMA Canada members and supporters, We have an exciting national event that you can look forward to and participate in!! Sunday, August 18, 2019 will be Canada’s Annual…
Patient Community update.
Dear Canada’s SMA Community and our supporters, Thank you for your continued trust and support as we inch our way through the process of access to treatment here in Canada.…