Canada’s Annual National SMA Awareness Day

Dear Cure SMA Canada members and supporters, We have an exciting national event that you can look forward to and participate in!! Sunday, August 18, 2019 will be Canada’s Annual National SMA Awareness Day. This national event will be celebrated in unison across the Canada. Synchronized Lighting Times Newfoundland Time Zone 6:30 Atlantic Time Zone…

Patient Community update.

Dear Canada’s SMA Community and our supporters, Thank you for your continued trust and support as we inch our way through the process of access to treatment here in Canada. We are, and continue to work hard to achieve what we set out to do from the very beginning, to advocate for access for all…

Ontario Expands Coverage of Spinraza!!

Ontario Government got it right!! We at Cure SMA Canada are very happy and proud to announce that the government of the province of Ontario has communicated with us that they have come to a mutually agreeable decision to approve reimbursement for Ontario’s Spinal Muscular Atrophy patients. As a follow-up to the national review process…